By the way

I neglected to report in March of this year that I had another dexa scan (bone density scan). Still “normal,” although there was a note indicating a slight thinning in the lumbar area. I guess normal means no statistically significant change.

Anyway, for now that’s one less thing to worry about.

Three years post-op and all’s well

Well, I passed my three-year tests today. Both mammogram and ultrasound were clear. On a day-to-day basis I’ve not thought much about it, but in the last few days before testing I start getting a little anxious. Now I’m just exhausted from being down at the medical center since 10:30 this morning. Got home about 3:30 pm.

I made some comment to the oncologist about a report I’d seen indicating a lot of women with earlier stages of breast cancer might not need chemo after all. But that wouldn’t have included me, he said. I could have been classified a Stage III because of the chest nodes that looked possibly cancerous on the first scan. But he didn’t want to freak me out unnecessarily. As I recall he said at the time that they might be cancerous but also might just be inflamed because of the nearby tumor. They did not “glow” or show up on later scans.

The question is moot now, of course. I had the chemo. And the radiation. And there’s been no sign of cancer since then.

So, hurray!

‘Dem bones’ are A-OK

I had a bone density (densitometry or “dexa”) scan yesterday (you just lie on a table while the machine passes overhead). At my age (73) I was probably way overdue for such a test. The only other one I’ve had was the one required when I signed up for Medicare, and as I recall then they only looked at my wrist.

Basically a dexa is an x-ray of your pelvis, lower back, and thighs, because nobody wants to see an old person break a hip (often the beginning of the end). It’s common in old age for bones to thin and weaken, especially in postmenopausal women. In addition, corticosteroids can cause it — I’ve had more than my share of them — and it’s also more common in taller women. I’m 5’8″ (or 5’7½” now if you want to believe the nurses at the cancer center).

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Medical guessing games

I need a secretary (er, make that “administrative professional”) to keep track of all my medical stuff — the notes, the meds, the appointments, the instructions, etc. And I needed that secretary yesterday when I saw my oncologist for the first time since mid-January. So much had happened that he wanted to know about, and I had a bunch of questions saved up for him. It all amounted to a ton of details flying back and forth. Details I wanted to remember. Needed to remember. But I didn’t take notes because I wanted to give him my full attention. Besides, it’s routine to get a four-to-six-page printout after each appointment, detailing everything.

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Nothing if not thorough

This morning I got yet another test result from that bronchoscopy I had waaaay back on December 29.

Not surprisingly, when one’s lungs are being examined for disease and/or damage, one of the things doctors look for is tuberculosis. This is done with an AFB (acid-fast bacilli) smear on a slide that is examined under a microscope for signs of mycobacteria. The smear provides presumptive results which can guide treatment decisions while culture results are pending.

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Bronchoscopy results mean more prednisone

My bronchoscopy last Tuesday was even worse than I’d feared but having bitched at two different doctors since then, I’m finally done with it. Except to say I’ll do it again only at gunpoint.

Rather than repeat the whole story for at least the third time, I’ll just pull from my notes:

Wed Dec 30

Bronchoscopy yesterday. Awful experience (I woke up half way through it). The lavage part was like choking to death, coughing as hard as I could and unable to clear my lungs. Terrifying. I’ll never trust versed again. That or the personnel were incompetent. Hard to believe my experience was the typical one that I was told was “no big deal.”

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And for the holidays I’m getting … a bronchoscopy

Oh joy. For my holiday surprise, I’m getting my very own bronchoscopy! On the 29th. One that will include a lavage and a biopsy. Now is a good time, the doctor said, because I’m completely weaned off the prednisone. And because the cough continues, not notably better or worse, but still definitely there. If it clears up before the 29th, I’m off the hook; I’m not counting on that.

I can’t begin to tell you how (not) thrilled I am by this. I may have mentioned before that I have a Class A Godawful gag reflex. I also have a deep distrust of the sedatives commonly used for the procedure, since I actually woke up from them during a colonoscopy about 15 years ago. All the assurances about how the drugs will ensure I don’t remember anything? Screw that. I don’t want to be aware of anything. And if I am aware, the well-being of anyone within reach will be in grave danger.

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The new doctor tries a new approach

Okay, I’m impressed. The new CT scans were just done yesterday and the pulmonologist called me today because she rightly assumed I wouldn’t want to wait until the 21st to make changes in my treatment. And there are definitely changes.

First, the scans confirmed the mosaic attenuation pattern she mentioned, which in turn confirms her preliminary diagnosis of bronchiolitis. They also showed a “ground glass opacity” in my left lung, the one that was catching some radiation. According to Wikipedia: “In radiology, ground glass opacity (GGO) is a nonspecific finding on computed tomography (CT) scans that indicates a partial filling of air spaces in the lungs by exudate or transudate, as well as interstitial thickening or partial collapse of lung alveoli.” Continue reading